A Sparkly Cure

Today the kids both had dentist appointments.  Since I had cancelled their early June appointments, we were more than 6 months from their last cleaning.

Which meant that Ian did not have diabetes the last time we were there.  I did not realize this until I was sitting alone in the lobby.

Finally!! See how normal diabetes has become for us?

As usual, they were running behind and we were running into lunch time so I told the hygienist to skip the fluoride today because we were going to need to eat lunch right away. (Insert puzzled look from hygienist but I still make no connection.)

30 minutes later they call me back for the exam.  The hygienist tells me that they moved MJ into the same room to sit with Ian while they waited for the dentist to do his exam “in case he didn’t feel good.”  I realized that Ian must have said that he had diabetes.   Good boy!

(Here come my zillion questions: Do you feel ok? Do you feel low? Do you feel high? Are you hungry?)

The dentist finally comes in….No cavities! (Since they never eat candy or sugary food/drinks I was not too surprised!)

On the way home I asked the kids how the whole diabetes topic came up.  Ian told me their conversation.

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Hygienist: So why do you have to eat lunch right away?

Ian: I have diabetes.

Hygienist: Oh, you do? That’s not in your chart. Do you take medicine?

Ian: Yeah, I get 4 shots a day.

Hygienist: You get shots????!!!!

~~~~~~~~

MJ then says, in her sarcastic middle school voice, eyes rolling, “Really? What do they think you do?  Put glitter on your forehead everyday?!”

If only a cure was that simple….

We need a change.

Monday is Ian’s next appointment with the endocrinologist.   I cannot wait.

We need a change.

He spends entirely too much time in the 200-300s and it is difficult to get a response from the doctor’s office.  They have a way to submit blood sugars online and they “will call you if they feel you need to make changes” but I feel like 1) the online feature is broken or 2) they aren’t reading my emails and notes regarding his blood sugar or 3) they’s changed the acceptable “in range” (just kidding, but seriously…..from what I can gather, the land of  >200 stinks….a lot.)

They are great doctors in a great hospital, don’t get me wrong.

And I know that there are MANY MANY kids being diagnosed and treated every day.  But still…..

What about my kid?

I am not happy about the fact that he has to be miserable and miss his afternoon snacks and be a grump butt and be tired and blah.

On Monday we are going to ask for a better plan – Permission and guidelines to make adjustments on our own without waiting for days for someone to call. (Leaving a message on the “hotline” isn’t any better. It says to give them 72 hours to get back with you and by then the weekend has rolled around it seems.)

I have a feeling his A1C will be up from the last time.

That stinks.

We thought we’d be in big time pump planning mode by this point but we had to cancel a few weeks ago when the flu hit us.

That stinks.

He’s starting school with crappy blood sugars.

That stinks.

I hate things that stink.

My attitude included, but We. Need. A. Change.

Thought #42: I don’t know whether to laugh or cry.

When I refilled Ian’s prescriptions for the 3rd time since his diagnosis, the pharmacist said, “No charge.”

What????

For January , I paid $509 for the first refill of Humalog and Lantus. (But let’s not forget lancets, test strips, ketone strips, syringes, and his Glucagon)

For February, I paid $50.

For March, “No charge.”

We had reach the maximum out-of-pocket.

In 52 days, we had spent enough money on medicine to not have to pay anything for the rest of 2013.

A blessing?

A relief?

Less paperwork to file with his dad’s insurance.

Grateful and thankful for my insurance plan.

I did a small jump for joy right there at the pharmacy counter.

And then on the way out, I thought, “Wow. This is sad.”

This is reality.

My boy has to rely on medicine that is so expensive that we’ve reached the max in less than two months.