1 in 100 people has celiac disease.
1 in 10 people with Type 1 diabetes has celiac.
Ian failed the blood test, as we already knew.
He will have a biopsy on March 14th.
That test will determine if he has “silent” (requiring a gluten-free diet for the rest of his life) or “latent” (meaning he has the potential to have it at some point in his life and will need to be tested every few years) celiac.
Obviously, latent is the better option.
And in the grand scheme of things, it’s not the end of the world. He will be healthier and apparently his diabetes will be easier to manage if we eliminate gluten from his diet.
But to a 9-year-old, who can only eat a set amount of food at designated times throughout the day and only with a shot of insulin…this is just completely unfair.
As the doctor explained the procedure to us, Ian broke down crying. Right there on the exam table, sobbing.
It. Broke. My. Heart.